My trip to Meet the Wizard of Oz ๐ŸŒˆ

I haven’t posted in awhile I honestly don’t know where the last few months have gone . I’ve spent so much time in hospital and the days just go by before you know it another month has passed . 

I had my auto stem cell in March and even though I was very sick at the start I recovered quickly . I was allowed home at day 16 which was fantastic . However two weeks later I developed a nasty infection from the line in my chest and so back into hospital for another week and a half . Then I was only out five days and had a meeting with my doctor in Cork . I was informed that the German team wanted me to have more treatment as the results from the auto weren’t low enough . So back into hospital for VTD which was 72 hrs of continuous chemo . My blood counts then dropped and I had to stay in hospital waiting for them to come up again . Thank god I got out in time to celebrate my sons communion ๐Ÿ’™
So after months and months of planning we are now in Germany ๐Ÿ‡ฉ๐Ÿ‡ช. I was told that I needed this treatment by the Professor in Galway who did my auto stem cell . My myeloma is very aggressive so the normal treatment isn’t enough for me . In Ireland they don’t preform allogenic transplants for Myeloma so I had to travel . I was so lucky to get government funding ( another battle but we got there in the end ) . We have rented a house over here and all my family are with me . I’ll be in hospital for weeks and have to stay close to the hospital for up to two months after .

I’m in the hands now of Prof . Einsele who in my mind is the Wizard of Oz he’s the one that will get me home . He has so much experience and his positivity is contagious. This is my chance and I’m going to get there .

I started last week with many tests they all went well thank god . Unfortunately trying to get a line in was not so good . On Tuesday they tried both sides of my neck but they weren’t successful due to blockages . Wednesday I had a line put into my chest only to find out after an x ray the line was misdirected into an incorrect vein . Needing to start chemo they put a temporary line in my groin so I was able to commence therapy . On Thursday morning they put a line in the right side of my chest and thankfully this has been working . So I’m now on day 4 and tomorrow I have 8 hrs of immunotherapy. I then have a days break and please god my donor transplant is on Wednesday .

I have a long tough road in front of me . At the moment I feel like I’ve met the Wizard of Oz but he has told me I have to back out and kill the witch !! Let’s hope I get through this and I’m back in the Emerald castle soon xxx ๐ŸŒˆ

mirror mirror on the wall who has the fairest skin of all ….. ๐Ÿ”ฎ

She used to be the best kept secret in Cork for skin care but I can’t say that any longer about my dear friend Sandra Barry from @Rejuvenate Clinic Glanmire . 

Now Sandra is booked out months in advance and has people traveling from all over Ireland to her to sort out their skin problems !!! I have been attending Sandra for the last ten years and she is definitely the best in the business . She is always ahead of the game sourcing new treatments and new products . She has been stocking Image products for years yet it is only lately we are seeing all the bloggers using them ! 

My favorite treatment that Sandra offers is the Meso Vytal so this is basically digital skin needling technology . There is no pain , it’s risk free and there are no injectables . โ€‹

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โ€‹this is moi having the treatment โคthere is minimal downtime with this procedure … you may be a little red but it  fades pretty quickly. 

The benefits are amazing … your skin will feel tighter plumper and fine lines dissapear !!! Makeup free after a Meso. Treatment wearing  some BB cream two days after Meso. My skin always feels fantastic after the treatment !! 
So girls if you want your skin to be the fairest of them all contact Sandra Barry of Rejuvante Glanmire at 0876895611 โค

There’s no place like home ๐ŸŒˆ๐Ÿ‘จโ€๐Ÿ‘ฉโ€๐Ÿ‘งโ€๐Ÿ‘ฆ

Over a year ago I was diagnosed with Multiple Myeloma , the same week I found out I was expecting my fifth baba . People often say to me ‘what awful timing ‘ but honestly I’m a firm believer in things happen for a reason and my special baby helped me through a very tough time . 

So basically for over a year I had an idea as to what treatment I had in store for me . In saying that I have certainly not been a text book case if anything I think I have challenged the doctors !!! My year has been one hell of a rollercoaster ride . When you least expect it something else crops up and you just have to pick yourself up and go again . 

A few months back I wasn’t sure if I’d make it to transplant , it was a very upsetting and worrying time for me . So I feel very blessed to be here today having chemo to prep my body for transplant on Thursday . This will be my first transplant and hopefully in May I will travel to Germany to have my second stem cell transplant … this will be an allogenic ( donor transplant ) โค

I have been on Chemo since May … while my little baby was growing inside me this potent stuff was working away doing what it needed to do . After Harry was born my chemo was changed to a much stronger form and from Oct to Jan I was on three types of chemo and high steroids weekly . The chemo I am having today is serious stuff !!!! This will blitz my body and it’s the balance of that and waiting for the stem cells to kick in is the hard part . 

So I’m sitting here watching this cytotoxic substance been pumped into me and I’m hoping it all works out . I’m looking forward to the future and planning so many different things . I want to be on the other side of the rainbow so I’m clicking my SJPs and wishing for time to pass that I’ll be back home with my babies โค๐ŸŒˆ

As Dorothy would say ‘ there’s no place like HOME ‘ 

Valentines Day waiting for stem cells โค

I’m sitting in a hospital bed in Galway staring out at the grey bleak day and wondering how the hell I ended up here !

I’m too young to have Myeloma . I’m a mum of five there’s no time for me to be sick but I am and I’m here waiting patiently for my stem cell count to rise . For me to have some type of remission I need to have a stem cell transplant . Last Monday I had high dose chemo and then spent the rest of the week injecting myself with nuopegen to boost my stem cell growth .

After a lot of strong chemo and radiotherapy my little stem cells are taking their time and have decided that Valentine’s Day will not be the collection Day ! 

So I’m here waiting for my Hubby to return with good ol’ M&S ( anything is better than hospital food ) and spend a bit of quality time together in my very fancy hospital chambre !! 

I usually make such a fuss about V day for my kiddies so I’m seriously missing them today . We had a special dinner on Sunday before I left and I had done the usual decorating โค but I had to be happy with FaceTime this morning and watch their happy faces before they headed off to school . I suppose I should be grateful that I can do that . 

I’ve spent most of the morning on instagram and I’m very amused at the work and effort that went into the perfect valentine pics for today ! Well mine is a pic of my family because they are my loves and that’s why I’m here sitting in this bed waiting for stem cells .

Happy Valentines Day โค